Insulin pump therapy in children and teenagers never ceases to surprise me. Just when you think you’ve seen it all, along comes a new twist. The latest seems to be the “mystery bolus” and its first cousin, the “sleep bolus”.

Only Pumpers Would Appreciate This:

I’ve been seeing more and more kids and teens who have unexplained bolus doses of insulin when the devices are downloaded in the office. Often these occur during the middle of the night. While some may be recalled many are not.

Today I saw a young lady who had two episodes of severe hypoglycemia resulting in the parents stopping her pump until she came in for a check up. When the pump memory was examined, there were large boluses given within 30-45 minutes of the two events. The parents of this teen never check the bolus history, but were surprised (as was the girl, who has no evidence of secondary gain from this behavior) by these boluses.

Over the past year, I’ve seen other children do similar things.

One boy bolted up in his bed at 4:30 AM, dreaming that his mother had called him down for breakfast, then proceeded to bolus himself and fall back to sleep, only to be found severely hypoglycemic at 6:30 when the parents came to awake him. Beyond the sleep bolus, the “mystery” bolus is far more common.

At our children’s diabetes camp, the staff is obliged to check the bolus histories on all campers each day to verify dosing. It is now commonplace to find boluses that the child can’t (or won’t) explain. Many of these cases are teen boys who most likely are bolusing for contraband food, snacks or even sugar cubes. The pump enables this behavior in quite a perfect way.

There is often little parental review of the bolus history by many parents. The child has a ready supply of insulin to take for whatever extra food they wish to eat. It’s the “dark side” of insulin pump use that gets little attention. The message here is: know how to retrieve your child’s pump history. You may be surprised at what you find. And it may not be extra bolusing.

Often there are just as many skipped or missed boluses.

This brings me to my first rule of insulin pumping:

Pump Rule #1: The pump is no better (or worse) than the human being it’s attached to.

Never forget that.

Here it is! Making great progress on this front lately and thought I would share the good news w/anyone interested in new paradigms of diabetes care including acceleration of the clinical trials process for new cures, new cure therapies and new devices to assist people with tight blood sugar control.

Announcing the SWEETKIDSNETWORK

Check it out online at www.sweetkidsnetwork.org and check back often to see progress announcements and to find out about research trials looking to recruit patients from the Sweet Kids Network.

Or more simply put, I won’t be the idiot dad calling home to ask “What’s for dinner?” right in the middle of what is most likely a site change or some form of trouble shooting the insulin pump, etc…

I just thought I would take a minute to share what it’s like to have real-time automated intelligence within the family dynamic of type 1 diabetes. I don’t know too many endocrinologists who would understand why I would want to get a real-time glucose alert (via email as shown above or on my cell phone which is my primary DI interface) when diabetes is managed by trends.

Yet, providers that work with patients in our trials are thrilled to receive automated blood sugar trending reports based on algorithms that define high risk. While these reports are infrequent, they are reliable and improve efficiency. That’s been missing from the world of self-reported patient data for years.

In this new world of patient-centric technologies, we need to realize how many players are on the patient’s team and that the needs of each team member are different. With automated diabetes management systems (ADMS), everyone gets what they ordered and none of what they don’t want or need.

I wonder what’s for dinner?