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Thoughts about current approaches to managing diabetes

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Archive for the 'Experiences' Category

Announcing a Type 1 Diabetes Practice Based Research Network (T1PBRN)

Thursday, September 27th, 2007

Healthcordia platform illustration as sweetkidsnetwork architecture

Here it is! Making great progress on this front lately and thought I would share the good news w/anyone interested in new paradigms of diabetes care including acceleration of the clinical trials process for new cures, new cure therapies and new devices to assist people with tight blood sugar control.

Announcing the SWEETKIDSNETWORK

Check it out online at www.sweetkidsnetwork.org and check back often to see progress announcements and to find out about research trials looking to recruit patients from the Sweet Kids Network.

Insights Into Real-Time Diabetes Intelligence (DI)

Monday, September 24th, 2007

GlucoMON Alert for Darby bg=329

Or more simply put, I won’t be the idiot dad calling home to ask “What’s for dinner?” right in the middle of what is most likely a site change or some form of trouble shooting the insulin pump, etc…

I just thought I would take a minute to share what it’s like to have real-time automated intelligence within the family dynamic of type 1 diabetes. I don’t know too many endocrinologists who would understand why I would want to get a real-time glucose alert (via email as shown above or on my cell phone which is my primary DI interface) when diabetes is managed by trends.

Yet, providers that work with patients in our trials are thrilled to receive automated blood sugar trending reports based on algorithms that define high risk. While these reports are infrequent, they are reliable and improve efficiency. That’s been missing from the world of self-reported patient data for years.

In this new world of patient-centric technologies, we need to realize how many players are on the patient’s team and that the needs of each team member are different. With automated diabetes management systems (ADMS), everyone gets what they ordered and none of what they don’t want or need.

I wonder what’s for dinner?

Disney Designers Tackle Hospital Transformation Project

Monday, September 24th, 2007

Disney - MakeAWish Airplane for Alaska Airlines

Disney announced recently a $10M donation to build a new Children’s Hospital in Orlando including the help of Disney’s experiential design team to ensure a better patient experience. It’s been said that laughter is the best medicine so why has it taken so long for the medical field to embrace this concept? Oh yeah, Disney donated $10M (good for them).

This is a great example of cross-industry collaboration that will definitely impact the way patient care is delivered including the way buildings are layed out, what materials are chosen, which fabrics are selected (ie - Disney scrubs?), which devices are integrated and how data gets moved including how information is shared with the patient.

From the story at ‘the #1 site for Disney’, laughingplace.com:

“This partnership with Disney is blending our two areas of expertise: the healing hands of Florida Children’s Hospital and the imagination and creativity of Disney,” said Marla Silliman, administrator of Florida Children’s Hospital. “By bringing them together, we are creating an environment in which even the sickest children can experience joy and happiness while they are in the hospital.”

Sounds like medical research too if you called it “Patient-Centric Design for Effecting Patient Outcomes”. However, what I especially like about this is the tangible nature of it including the fact that they’ve already established dates for when we can expect it to open and all of the players necessary to realize the vision are already on board. Clearly, nobody doubts that there is a Disney team of experts who could totally transform a destination venue, including a hospital. Heck, they already transformed an airliner in collaboration with Alaska Airlines and Make-A-Wish Foundation. It’s also clear that Disney can afford to spend $10M to extend their brand into yet another industry.

So what happens when these kids go home and what could have been done better with a little bit of experiential design to keep the patient out of the hospital in the first place? The questions I’m left with is will the outpatient equivalent be made available soon and how does reimbursement work or hinder the availability of Disneyesque outpatient care models, devices and technology systems.

I have no doubt that we’ll see the outpatient equivalent of this effort and one focused on improving diabetes care? Who gets to use it will depend on insurance reimbursement on the one hand and a patient’s commitment and financial ability to get what they need on the other. Finally, which doctors will be the progressive early adopters willing to work with patients under these new models of care that you would have expected to see described at Epcot Center?